All about me
!!Update!!
Wow we have smashed our £40.000 target all thanks to everyone who has help and supported us over the past 7 months. We could never have dreamt how much support that we would receive and how quickly we raised the money. We can now achieve the Sdr operation,& a second orthopaedic surgery on Jakes muscle lengthening and heel cord so Jake will walk with his feet flat to the floor which we did not know Jake needed. We now have enough to cover all intensive physiotherapy and equipment that Jake will need for 12 months recovery to achieve our goal to get Jake walking unaided. We also have to go back out to Missouri 1 year post surgery for Jake to have a full assessment and now this has covered the cost of that. So on that note a great big thank you again to every single person who donated or helped in any way, we would never have done it without you all.
All our love Jake, Jolene, David & Chloe
!! Update !! 8/11/2011 We are now pleased to announce that Jake is now booked in for is sdr operation on 9th February 2012.
Hi i am 7 years old but my start to life was not the greatest, i was born at 29 weeks which is 3 months early and was in special care baby unit at walsgrave hospital for 7 weeks.My family tell me i am funny, intelligent, determined and a loving little boy. I don’t think my little sister would agree she’s nearly 2 and all she does is mess up my bedroom and annoys me.
At just 1 years old i was diagnosed with Cerebral Palsy.
I have Spastic Diplegia CP which means it affects both of my legs. Although i do try i cannot walk unaided because my muscle tone is tight, poor balance and i am unable to keep my feet flat on the ground. This leads to frequent trips and falls, which is very embarrassing and upsetting for me as a 7 year old boy with my friends. It also means that my stamina is much less than it should be and i tire easily.
To keep my mobility i have had physiotherapy at home for the past 6 years. I also wear a splint on my legs to help give stability and improve posture.
I have had several courses of Botox injections. The Botox is injected directly into my stiff leg muscles and is designed to temporarily paralyse them. This treatment eases the tightness in my legs but wears off after 4-5 months, although the benefits can last for longer.
My mummy found information of a procedure in America called Selective Dorsal Rhizotomy (SDR). This has been practised by Dr Park at St Louis Children’s Hospital, MO for 28 years. It has an amazing success rate, with the Hospital reporting 100% of patients permanently reducing spasticity. This procedure involves cutting the overactive nerves located in the spinal cord which lead to my legs causing the spasticity.
The advantage of the SDR is that it permanently treats my condition itself, rather than the Botox which only temporarily eases the symptoms.
So i kindly ask you to be as generous as possible and help me raise my target amount of £40,000 for this life changing opportunity.
Thank You For Your Support.
